These resources are more effective when used in conjunction with the book.
Buy NowName of Activity: Welcome and Framing for Ableism and Disability Justice
Instructional Purpose Category: Tone setting/developing group guidelines
Instructional Purpose: Facilitators introduce themselves, discuss the relevance of the workshop to the context of the group, and participants introduce themselves briefly.
Learning Outcomes: After this activity participants will be more familiar with the purpose of the workshop and its relevance to their specific context. Participants will also begin to get to know each other and the facilitators.
Time Needed: 15-20 minutes
Materials Needed: everything you would bring or ask participants to bring to make the activity happen
Degree of Risk: Low - medium risk
Procedure:
Facilitation Notes & Considerations: Prior to the workshop, facilitators should prepare what they are going to say about why they are committed to disability justice and what they bring to disability justice work. If working with a co-facilitator, you should check-in prior to the workshop about what each of you are going to say to make sure what you share compliments each other and makes sense for the goals of the workshop.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Hillary Montague - Asp and Davely Shlasko
Name of Activity: Abstract Shapes Icebreaker for Ableism and Disability Justice Workshop
Instructional Purpose Category: Icebreaker
Instructional Purpose: To get participants energized and talking to each other. This icebreaker “does disability justice” by providing an opportunity for students to laugh, be creative and ask questions in an academic setting. This activity also lets participants know that joy and fun are encouraged during the workshop.
Learning Outcomes: After this activity, participants will
Time Needed: 10-15 minutes
Materials Needed:
Degree of Risk: Low risk
Procedure:
Facilitation Notes & Considerations: Facilitators should “do” disability justice at every step of the workshop. For this activity, that means making sure that folks can move around as needed and that if they can’t or don’t move, that their group members move to them.
Recommended Materials/Readings for Students: None.
Recommended Supplementary Materials/Readings for the Facilitator: None.
Name(s) to credit for this activity:
Name of Activity: Scavenger Hunt Icebreaker for Ableism and Disability Justice Workshop
Instructional Purpose Category: Icebreaker
Instructional Purpose: To get participants talking and getting to know each other. This icebreaker “does disability justice” by providing an opportunity for students to share about their own lives at a self-selected level of intimacy. This activity sets the tone for the workshop by demonstrating methods of engagement other than writing or simple discussion.
Learning Outcomes: After this activity, participants will
Time Needed: 15-20 minutes (depending on group size)
Materials Needed:
Degree of Risk: Low - medium risk
Procedure:
Facilitation Notes & Considerations: Facilitators should know what they are going to share ahead of time with the intention of modeling authenticity and setting the tone.
Recommended Materials/Readings for Students: None.
Recommended Supplementary Materials/Readings for the Facilitator: None.
Name(s) to credit for this activity: Romina Pacheco
Name of Activity: Entry Points and Access Needs for Ableism and Disability Justice Workshop
Instructional Purpose Category: Tone setting / developing group guidelines
Instructional Purpose: To set the tone for the workshop and introduce participants to the concept of access needs, to develop trust and foster relationship building as a group, to invite participants to ground themselves in the space through self-reflection and sharing, to assess what participants and facilitators need to do their best learning during the workshop and collectively try to meet those needs.
Learning Outcomes: After this activity participants will…
Time Needed: 30-40 minutes
Materials Needed: Newsprint, whiteboard or other visual presentation medium for documenting access needs. The list of access needs should be documented in a way that will remain visible to the group throughout the entire duration of the workshop.
Degree of Risk: Medium-high (beginning of workshop); medium-low (follow-up check-ins throughout workshop)
Procedure:
Depending on length of the workshop, facilitators should ask the group at least once (midway through the workshop) how accessible the space is feeling and if there are any updates that need to be made for access needs.
Facilitation Notes & Considerations:
The goals of this activity are to break down power structures by sharing with participants, to give examples of entry points and access needs, and to model talking about experiences of both privilege and oppression within the context of disability. As such, it is important for facilitators to write out what they will share with the group about their entry points and access needs and share what they plan to say with their co-facilitator. This helps ensure that facilitators share for about 2 minutes and that facilitators share a variety of perspectives and experiences with participants. Once finalized, we encourage you to practice speaking your story aloud to yourself and/or one or two people before the workshop to become familiar with what it might feel like to share with participants. When preparing to share entry points, facilitators should consider the following:
Recommended Readings/materials for Students:
Recommended Supplementary Materials/Readings for the Instructor or Facilitator: The Universal Design for Learning (UDL) Guidelines https://udlguidelines.cast.org/
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Community Agreements for Ableism and Disability Justice Workshop, Option A: Collectively Developed
Instructional Purpose Category: Tone setting / developing group guidelines
Instructional Purpose: To set the tone for the workshop, to develop trust and foster relationship building as a group, to invite participants to reflect on their own communication styles and needs and practice sharing those needs with the group and to collectively establish a set of agreements for how participants want to interact with each other, facilitators and the physical/virtual space during their time together.
Learning Outcomes: After this activity participants will...
Time Needed: 10-25 minutes depending on group size and desired depth of scaffolding
Materials Needed: Newsprint, whiteboard or other visual presentation medium for documenting community agreements. The list of community agreements should be documented in a way that will remain visible to the group throughout the entire duration of the workshop.
Degree of Risk: Medium risk
Procedure:
Depending on the length of the workshop, facilitators should ask the group at least once (midway through the workshop) how community agreements are working and if there are any updates that need to be made.
Facilitation Notes & Considerations:
This activity can easily generate a list of jargon that is relatively meaningless or that perpetuates various forms of oppression. To avoid this, consider the following:
Facilitators should be prepared to ask follow-up questions or intervene in some way if agreements such as those listed above are suggested. How will you encourage participants to reframe suggested agreements that unintentionally perpetuate oppression?
Recommended Readings/materials for Students:
Recommended Supplementary Materials/Readings for the Instructor or Facilitator: Hunter, D. (n.d.). Break the rules: How ground rules can hurt us. Training For Change. https://www.trainingforchange.org/training_tools/break-the-rules-how-ground-rules-can-hurt-us/
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Community Agreements for Ableism and Disability Justice Workshop, Option B: Agree to Check-In Periodically
Instructional Purpose Category: Tone setting / developing group guidelines
Instructional Purpose: To set the tone for the workshop, to develop trust and foster relationship building as a group, to invite participants to reflect on their own communication styles and needs and practice sharing those needs with the group and to collectively establish a set of agreements for how participants want to interact with each other, facilitators and the physical/virtual space during their time together
Learning Outcomes: After this activity participants will…
Time Needed: 5-10 minutes
Materials Needed: Newsprint, whiteboard or other visual presentation medium for documenting community agreements. The list of community agreements should be documented in a way that will remain visible to the group throughout the entire duration of the workshop.
Degree of Risk: Medium risk
Procedure:
Depending on the length of the workshop, facilitators should ask the group at least once (midway through the workshop) how community agreements are working and if there are any updates that need to be made.
Facilitation Notes & Considerations:
This activity can easily generate a list of jargon that is relatively meaningless or that perpetuates various forms of oppression. To avoid this, consider the following:
Facilitators should be prepared to ask follow-up questions or intervene in some way if agreements such as those listed above are suggested. How will you encourage participants to reframe suggested agreements that unintentionally perpetuate oppression?
Recommended Readings/materials for Students:
Recommended Supplementary Materials/Readings for the Instructor or Facilitator: Hunter, D. (n.d.). Break the rules: How ground rules can hurt us. Training For Change. https://www.trainingforchange.org/training_tools/break-the-rules-how-ground-rules-can-hurt-us/
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Comparing and Contrast Models of Disability, Option B: Using Vignettes to Illustrate Models of Disability
Instructional Purpose Category: Exploring institutional-level oppression; Exploring cultural- or societal-level oppression; Terminology /exploring language
Instructional Purpose:Participants use scenarios to explore how models of disability show up in everyday experiences.
Learning Outcomes:After this activity participants will better understand the different models/approaches to disability and will have practiced identifying models of disability through the use of scenarios.
Time Needed:45 minutes
Materials Needed: Copies of Examples to illustrate ableism and disability justice handout
Degree of Risk: Low risk
Procedure:
Facilitation Notes & Considerations: A solid understanding of the models of disabiity is required for this activity. It is important that facilitators are familiar with each vignette and how the models of disability are demonstrated. It may be useful to prepare by jotting down notes about the prompts for each of the five vignettes so you can highlight and/or fill in any gaps left by participants.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Hillary Montague-Asp and Davey Shlasko
Name of Activity: Exit Ticket for Ableism and Disability Justice
Instructional Purpose Category: Tone setting
Instructional Purpose:Participants write down brief reflections on their experience of the course/workshop so far.
Learning Outcomes:Participants will practice providing meaningful feedback.
Time Needed:5 minutes
Materials Needed: Notecards
Degree of Risk: Low risk
Procedure:
Facilitation Notes & Considerations: Be sure to read note cards prior to continuing with quadrant 2 so that adjustments can be made as needed.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Hillary Montague-Asp and Davey Shlasko
Name of Activity: Early Learnings about Ableism and Disability Justice
Instructional Purpose Category:
2 - Early learning / socializations
4 - Exploring cultural- or societal-level oppression
8 - Identifying stereotypes
Instructional Purpose:This activity guides participants through structured reflection and sharing about their earliest learnings about ableism and disability. As participants make sense of their reflections through facilitated discussion, they develop a shared understanding of common beliefs, norms, and stereotypes related to disability (which can be described as cultural-level manifestations of ableism), and explore how these messages play out in their current thinking and behavior.
Learning Outcomes:After this activity participants will …
Time Needed:60+ minutes; 45+ minutes if the individual reflection (step 3) is completed as homework in advance
Materials Needed:
Degree of Risk: This is a medium-risk activity for most participants.
Procedure:
Recall an early memory from your childhood, when you noticed a difference in people’s abilities (within the same age group - i.e. not just a difference in adults’ abilities as opposed to kids’ abilities). For example, it might be a moment when you noticed that some people could do things others could not (such as walk, see, hear, etc.), or some people needed help that others did not (such as a personal care attendant), or needed to use tools that others did not (such as a wheelchair or communication device). Once you have an example in mind, reflect on:
Facilitation Notes & Considerations:
As with any personal reflection activity, facilitators should do the activity themselves before facilitating it with participants. This parallel process helps facilitators anticipate feelings and topics that might come up, as well as build trust and rapport with cofacilitators.
Facilitators can further prepare by listing messages about disability that were prominent in mass media during the time periods participants will be reflecting about - which will vary depending on the age of the participants. Prominent news stories or fictional representations can serve as shared reference points in case some participants have difficulty generating more personal examples.
Participants may process memories and reflections at varying paces. Providing the reflection prompts in advance can make the activity more universally accessible, even if you will also give time for individual reflection during the session.
Participants who grew up disabled will tend to have a very different experience of the activity than those who did not. It may be helpful to remind participants to reflect in a way that’s helpful for their own learning. For example, a participant who has used a wheelchair since childhood may not need to reflect on stereotypes or messages about wheelchair users, and should not be asked to do so for their classmates’ benefit; but the same person might learn something new from reflecting on messages about other kinds of disabilities that they don’t personally experience.
Recommended Materials/Readings for Participants: No readings are required for this activity. If participants have read anything that might be relevant to their reflections, such as texts about media representations of disability or about disability in early childhood education, facilitators should support participants to make connections between the discussion and those texts.
Recommended Supplementary Materials/Readings for the Facilitator: ??
Name(s) to credit for this activity: ??
Name of Activity: Reading Discussion on Ableism and Disability Justice
Instructional Purpose Category: Depends on readings - to fulfill its role in the design, it’s most helpful if this discussion focuses on one or more of the following:
5 - Exploring individual/interpersonal-level oppression
6 - Exploring cultural- or societal-level oppression
7 - Exploring internalized oppression, internalized messages, or implicit bias
Instructional Purpose: This activity provides an opportunity to reflect on and discuss examples of ableism and disability justice that emerge from assigned readings (and/or other media), and make connections to their own experiences and thinking. This activity is only appropriate for courses/trainings in which homework is assigned.
Learning Outcomes: After this activity participants will …
Time Needed: Flexible, 30-60 minutes is ideal
Materials Needed:
Degree of Risk: This is a low- to medium-risk activity for most participants.
Procedure:
This should be a discussion, not a sharing/listening exercise - they can ask each other follow-up questions, name similarities and differences across their different reflections, etc.
If needed, you can ask each group to designate a facilitator and time keeper.
The prompts for discussion should be tailored to the particular materials you assign, and to the time frame you have available. Here are some sample questions that you might use or adapt:
In the planning process, facilitators should engage in the same discussion prompts that will be assigned to students. This parallel process helps facilitators anticipate feelings and topics that might come up, as well as build trust and rapport with cofacilitators.
Sometimes, participants will have an easier time identifying institutional-level manifestations of ableism than interpersonal, internalized or cultural-level manifestations. Although institutional ableism is very important, this activity focuses on other levels - specifically because they are often hard to identify for people who aren’t directly impacted by them. If this happens, facilitators should name it, and redirect participants to the discussion prompts. There is also the option to use this as a learning moment, by inviting participants to reflect on what makes it easier to focus on institutional examples and what makes it harder to focus on interpersonal, internalized and/or cultural examples.
Recommended Materials/Readings for Participants: Facilitators should select materials as explained above
Recommended Supplementary Materials/Readings for the Facilitator: If materials assigned to participants include an excerpt of a longer work, it’s often helpful for facilitators to familiarize themselves with the entire thing, in order to provide context to support participants’ understanding. Similarly, it’s often helpful for the facilitators to read materials that cite, review, or comment on the materials that are assigned to participants.
Name(s) to credit for this activity: ??
Name of Activity: Reflection Homework on Ableism and Disability Justice
Instructional Purpose Category:
4. Exploring institutional-level oppression
5. Exploring individual/interpersonal-level oppression
7. Exploring internalized oppression, internalized messages, or implicit bias
12. Exploring privilege
Instructional Purpose: This homework activity, followed by discussion when the group convenes, encourages participants to notice ableism in their day-to-day lives, and to begin to understand how disabled people / people with disabilities navigate ableism.
Learning Outcomes: After this activity participants will …
Time Needed: Assignment provided at least one week in advance; 30+ min for discussion.
Materials Needed: none
Degree of Risk: This is a low- to medium-risk activity for most participants.
Procedure:
At least one week in advance of the session in which the discussion will take place, provide the following prompt as homework (edited to suit your context). If this is your first session, participants will benefit from having the Glossary and/or other reading material to help them understand the assignment.
On at least two focused occasions in the week leading up to our seminar, spend some time noticing and reflecting on your day-to-day experiences and environment (physical, technological, relational) related to ableism:
You are encouraged to make notes in whatever way you find most helpful, and bring them to the seminar on __(date)___, when we will discuss your observations.
In the seminar …
Recommended Materials/Readings for Participants:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Hillary Montague Asp and Davey Shlasko
Name of Activity: Timeline of ableism and disability justice
Instructional Purpose Category:
8. Exploring history
9. Exploring liberation and social action
Instructional Purpose: To explore the history of ableism and collective action against ableism, with a focus on the United States
Learning Outcomes:After this activity participants will…
Time Needed: 75+ minutes
Materials Needed: Timeline posters, sticky notes
Degree of Risk: Low- medium risk (very little personal sharing, but exposure to upsetting ideas)
Procedure:
Facilitation Notes & Considerations:
When facilitating in person we like to display the timeline physically on the walls of the training room, and leave it up for the entire session. This supports participants who favor kinesthetic as well as visual learning. If facilitating remotely, or depending on the learning needs of the group, you may instead display the timeline electronically. There are a number of free web-based timeline creators available for this purpose.
To access this activity participants need to be able to move around the room and read. Make sure there is ample space to move around (including for participants who use mobility aids and/or have balance issues). Make the timeline available in advance as a screen reader-accessible document so that participants who use screen readers (whether because of visual impairment, learning disability, or any other reason) can access the text. The pictures in the provided timeline are meant to illustrate the text but not to convey additional meaning; however, a best practice for visual accessibility is to provide a text description of every picture. (When creating a screen reader-accessible document, the description will be embedded so that it’s not visible but is recognized by the screen-reading software.) If you use the option of having participants share reactions on sticky notes, and there are participants who can’t see and/or read handwritten text, you can have the group voice their reactions in between the gallery walk and the small group discussion.
For all participants, learning about the history of disability can be upsetting. People often have strong reactions to learning about physical and reproductive abuses, and may be surprised at how recent some of the historical abuses are. Providing opportunities to express emotions is important.
For groups that include international students and/or immigrants, it will be helpful to make connections to disability history in other parts of the world. Facilitators can do research in advance to add such content to the timeline, and/or can invite all participants (not just those who are from outside the US) to add information they know about disability internationally.
Recommended Readings/materials for Students: Any reading or other assignments that provide additional information about history are supportive for this activity.
Recommended Supplementary Materials/Readings for the Instructor or Facilitator: The Universal Design for Learning (UDL) Guidelines https://udlguidelines.cast.org/
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Film discussion on ableism and disability justice
Instructional Purpose Category:
8. Exploring history
9. Exploring liberation and social action
Instructional Purpose: To explore the history of ableism and collective action against ableism, with a focus on the United States
Learning Outcomes: After this activity participants will…
Time Needed: 2.5 hours (1 hour 45 min to show film; 45+ min for discussion)
Materials Needed: Crip Camp film -https://cripcamp.com/; reflection question handout; visual presentation medium (marker board, easel sheets, etc.)
Degree of Risk: Low-risk
Procedure:
Facilitation Notes & Considerations:
Viewing films as a group presents a number of accessibility challenges. It will be useful to have asked participants about their access needs in advance so that you can make sure to meet them. The film can also be assigned as homework (allowing people to use accessibility features they may have access to at home).
For all participants, learning about the history of disability can be upsetting. Although the tone of the film is mostly hopeful, people may be surprised to learn how limited the options were for disabled people in the 1970s, and how recent some of the disability rights protections are that we now take for granted. For abled participants, this may prompt uncomfortable reflection on their own privileges. For some disabled participants, it could also prompt uncomfortable reflection on how much worse off they might have been if they’d been born a few decades earlier, or anger at how little has changed in some ways. Providing opportunities to express emotions is important. Depending on the group, it may be helpful to offer the option to discuss the film in affinity groups.
This film takes a specific approach to a moment in disability rights activism. There are many other moments and themes in disability that it does not cover. Time permitting, and depending on the group, it may be useful to supplement it with readings and/or a lecture providing additional historical context.
Recommended Readings/materials for Students: Any reading or other assignments that provide additional information about history are supportive for this activity.
Recommended Supplementary Materials/Readings for the Instructor or Facilitator:
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Closing Circle for mid-way through Ableism and Disability Justice workshop
Instructional Purpose Category:
11. Processing / debriefing the process
Instructional Purpose: To reflect on learnings so far and transition to the second half of the course/workshop
Learning Outcomes: After this activity participants will…
Time Needed: 15 min
Materials Needed: none
Degree of Risk: Low-risk (self-selected risk)
Procedure:
Facilitation Notes & Considerations:
The closing of a workshop session is very important to the overall impact on participants and should be planned thoughtfully, but it is also often the most flexible part of a session plan. Based on how the session has gone so far, facilitators should feel free to adjust their plans for the closing circle to bring the experience to a resolution.
Sometimes after an intense learning experience, transitioning back to everyday life can feel awkward, for facilitators as well as participants. Encourage participants to take care of themselves and each other. Co-facilitators should find time to debrief soon, but may need a break first!
Recommended Readings/materials for Students:
Recommended Supplementary Materials/Readings for the Instructor or Facilitator:
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Revisit Community Agreements and Access Needs for Ableism and DJ workshop
Instructional Purpose Category:
3. Tone setting / developing group guidelines
11. Processing / debriefing the process
Instructional Purpose: Participants review the previously documented agreements, amend them if needed, and have the opportunity to update each other about their present access needs.
Learning Outcomes: After this activity participants will …
Time Needed: 15 min
Materials Needed: The group guidelines that were previously developed, on an easel pad, slide, and/or handout. If notes were taken about access needs, those also should be available on an easel pad, slide, and/or handout.
Degree of Risk: low to high, depending on how the process has been up until now
Procedure:
Facilitation Notes & Considerations:
In many cases, this activity will bring up little or no changes, and may take less than the allotted time. It’s worth doing anyway, because it reinforces the practice of collective access and normalizes that people have variable needs.
If the process in previous sessions was challenging or if conflict occurred, this activity may feel higher risk. It may be helpful to remind participants that the goal of formulating guidelines is not to categorize people or even behavior as good or bad, but rather to communicate clear expectations that will help this particular group function together for this particular workshop. Furthermore, the purpose of guidelines is not to prevent all conflict, but rather to enable the group to navigate conflict that comes up in constructive ways. If participants feel the guidelines didn’t “work” in previous sessions, some may frame it as a failure on the part of the group or the facilitators. It can be helpful to reframe it as a learning opportunity, and as a normal process of negotiation in groups of people with different needs.
Rarely, a participant may propose a guideline or access step that conflicts with someone else’s needs - or, people may simply disagree about what the guidelines should be. In that case the facilitators should try to avoid adjudicating who is “right” or whose needs are more important, and instead aim for a “both/and” approach, using creative problem solving to meet as many needs as possible.
Recommended Materials/Readings for Students: none
Recommended Supplementary Materials/Readings for the Facilitator: Chapter 2: Pedagogy and Chapter 3: Design and Facilitation
Name(s) to credit for this activity: This is a legacy activity we have learned from generations of facilitators, most recently updated by Davey Shlasko.
Name of Activity: Current Events and Disability History
Instructional Purpose Category:
4. Exploring institutional-level oppression
5. Exploring individual/interpersonal-level oppression
6. Exploring cultural- or societal-level oppression
Instructional Purpose: Using examples drawn from current news and social media, participants draw connections between current manifestations of ableism and themes from disability history. Participants then use the same examples to describe how the interpersonal, institutional, and societal levels of ableism reinforce each other.
Learning Outcomes: After this activity participants will …
Time Needed: 75 min
Materials Needed: The same timeline used for the Timeline of Ableism and Disability Justice in quadrant 2. Sticky notes. Painters tape.
Degree of Risk: Low to medium risk
Procedure:
In this graphic, the individual/interpersonal level is called “individual beliefs, attitudes and behaviors,” the institutional level is called “structures and policies,” and the cultural/societal level is called “widely held beliefs and norms.” Each level is depicted as a yellow gear with black spokes. The three gears are arranged in a circle with smaller black gears in between, such that if one of the “level” gears were to turn, the other two would have to also turn in the same direction. Clockwise arrows show how the gears turn each other; however, it’s important to note that this isn’t a cycle that goes in one direction - any gear in the system influences the other gears. For example:
While the gears depict a single ism, in reality all the isms are “turning” each other simultaneously. In the above example, one might point out how racism and classism lead to disparities in school funding (structural), to different expectations of students across race and class (cultural/societal), and to bias in decision-making regarding school discipline (individual/interpersonal), all of which complicate and magnify the impact of ableism in the situation.
Optionally, have participants use the handout on the last page of this document to make notes about each example they talk through.
Facilitation Notes & Considerations:
When scheduling permits, it is valuable to assign homework for participants to gather their own examples based on media (news, social media, and others) that they already access. This ensures that the examples will be relevant to the participants and their communities. On the other hand, participants may have difficulty finding any examples. That challenge is a learning experience in itself, and facilitators can discuss what structural and cultural factors make it so hard to find examples of such content in media. To ensure that there are enough examples to use for the activity, facilitators should prepare a variety of examples themselves, in case participants don’t find enough examples or don’t find enough of a variety of examples.
The first part of the activity, connecting current manifestations with historical themes, may bring up feelings of hopelessness. It’s important to acknowledge such feelings, but not to dwell in hopelessness for too long. Including examples of disability activism (both current and historical) can alleviate hopelessness to some extent. It may also be helpful to suggest a reframing of hopelessness as grief. While hopelessness implies a belief about the future, grief can capture the deep sadness and loss of recognizing the pervasiveness and durability of ableism, without predicting what will or won’t continue into the future.
The second part of the activity, using levels or gears to discuss how manifestations of oppression reinforce each other, can likewise lead to feelings of overwhelm at the magnitude and complexity of systemic oppression. On the other hand, the model also offers some hope in that it shows how action against one manifestation of oppression ultimately impacts other manifestations as well.
The gears model also offers illustrations of some key points about the roles of individuals in systemic oppression. It shows how our past attitudes and behaviors are not our “fault,” but are the result of our positions in systems that need us to take up and act on widely-held beliefs and norms. At the same time it shows that our own beliefs and intentions are not the only factors driving our behavior, and so good intentions are not enough. In this model there can be no neutral action; if we don’t actively resist ableism, the other gears will drive our behaviors (and even beliefs) in an ableist direction.
The gears model relies on a visual metaphor and so may be less useful for participants with visual impairment. For these participants, as well as for others who prefer a more kinesthetic learning style, it may be helpful to bring actual gears (such as from a children’s building set, or simply cut out of cardboard) as a tactile illustration.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Hillary Montague-Asp and Davey Shlasko. Credit for the “gears of systemic oppression” is Davey Shlasko at Think Again Training & Consulting.
Name of Activity: Identifying Ableism in Your School/Workplace/Community
Instructional Purpose Category:
4. Exploring institutional-level oppression
5. Exploring individual/interpersonal-level oppression
6. Exploring cultural- or societal-level oppression
Instructional Purpose: Beginning with a framework of ableism at the interpersonal, institutional, and societal levels, participants identify and analyze examples from their own contexts.
Learning Outcomes: After this activity participants will …
Time Needed: 60 min
Materials Needed: Handout “Using the Gears to Think Through Examples” (attached), multiple copies per participant. The same image on a slide or poster. (Sample slides are provided.)
Degree of Risk: Low to medium risk
Procedure:
In this graphic, the individual/interpersonal level is called “individual beliefs, attitudes and behaviors,” the institutional level is called “structures and policies,” and the cultural/societal level is called “widely held beliefs and norms.” Each level is depicted as a yellow gear with black spokes. The three gears are arranged in a circle with smaller black gears in between, such that if one of the “level” gears were to turn, the other two would have to also turn in the same direction. Clockwise arrows show how the gears turn each other; however, it’s important to note that this isn’t a cycle that goes in one direction - any gear in the system influences all the other gears.
For example:
The facilitator should provide one example, such as the above, and then talk through a second example with the group’s input. For the second example, choose a manifestation of ableism that the group has already discussed, that is apparent in one of the gears/levels. Then ask the group what must be going on in the other two gears/levels that would relate to that example. For example:
Continue the discussion until there are a few examples in each gear, and you have touched on how each gear influences both of the others.
While the gears depict a single ism, in reality all the isms are “turning” each other simultaneously. In the first example above, one might point out how racism and classism lead to disparities in school funding (structural), to different expectations of students across race and class (cultural/societal), and to bias in decision-making regarding school discipline (individual/interpersonal), all of which complicate and magnify the impact of ableism in the situation. This can be illustrated with several sets of interlocking gears. (A larger image of the interlocking gears is provided in the slide deck.)
In the course of the interactive presentation, look for opportunities to highlight these key points about the roles of individuals in systemic oppression, which the gears metaphor helps to demonstrate:
Facilitation Notes & Considerations:
Discussing how manifestations of oppression reinforce each other can lead to feelings of overwhelm and hopelessness at the magnitude and complexity of systemic oppression. On the other hand, the model also offers some hope in that it shows how action against one manifestation of oppression ultimately impacts other manifestations as well. It is important to follow up this activity with tools and strategies for making change.
The gears model relies on a visual metaphor and so may be less useful for participants with visual impairment. For these participants, as well as for others who prefer a more kinesthetic learning style, it may be helpful to bring actual gears (such as from a children’s building set, or simply cut out of cardboard) as a tactile illustration.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Davey Shlasko, Think Again Training and Consulting. Enclosed images including handouts and slides are © Think Again Training and Consulting, and may be used with attribution for the purpose of this activity.
Name of Activity: Film discussion on ableism and disability justice
Instructional Purpose Category:
4. Exploring institutional-level oppression
6. Exploring cultural- or societal-level oppression
9. Exploring liberation and social action
Instructional Purpose: To discuss contemporary manifestations of ableism and contemporary examples of disability organizing, using any of a number of documentaries as a starting point.
Learning Outcomes: Specific learning outcomes vary depending on which film the facilitators choose. For example: After this activity participants will…
Time Needed: variable, depends on the film chosen
Materials Needed: Film, or several short film clips, of facilitators’ choosing. This chapter’s Resource List provides some options, and facilitators should also look for recent and/or locally relevant options.
Degree of Risk: Low-risk
Procedure:
Facilitation Notes & Considerations:
Viewing films as a group presents a number of accessibility challenges. It will be useful to have asked participants about their access needs in advance so that you can make sure to meet them. The film can also be assigned as homework (allowing people to use accessibility features they may have access to at home).
For all participants, learning about contemporary examples of ableism can be upsetting. People may be surprised to learn how many obstacles still exist for disabled people. For abled participants, this may prompt uncomfortable reflection on their own privileges. For some disabled participants, it could prompt feelings of resentment, anger, sadness or hopelessness. Providing opportunities to express emotions is important. Depending on the group, it may be helpful to offer the option to discuss the film in affinity groups.
Recommended Readings/materials for Students: Any reading or other assignments that provide additional context for or updates about the events depicted or discussed in the film is useful.
Recommended Supplementary Materials/Readings for the Instructor or Facilitator:
Name(s) to credit for this activity: Davey Shlasko and Hillary Monague-Asp
Name of Activity: Energizer for Ableism and Disability Justice Workshop
Instructional Purpose Category:
1. Icebreakers
Instructional Purpose: This activity gets participants energized for the last quadrant of the workshop, or any other time the group is returning from a break.
Learning Outcomes: After this activity participants will …
Time Needed: 5 min
Materials Needed: none
Degree of Risk: low to medium
Procedure:
Different options have different accessibility limitations, so facilitators should choose one that will work for the group.
Facilitation Notes & Considerations: Many icebreakers and energizers have accessibility limitations, and this is no exception. If none of the options for this activity make sense for your group, choose a different energizer. Note the purpose is not to get everyone to be “high energy,” which simply isn’t feasible for some people with disabilities that affect energy level. The purpose is to raise the energy level, focus and engagement in a way that works for the people in the room, to counteract the afternoon slump that can happen when a group returns from a lunch break.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: This is a legacy activity we have learned from many generations of facilitators, most recently adapted by Hillary Montague-Asp and Davey Shlasko.
Name of Activity: Sculpting Disability Justice
Instructional Purpose Category:
9. Exploring liberation and social action
Instructional Purpose: Participants use an embodied, applied theater approach to explore and envision how disability justice feels
Learning Outcomes: After this activity participants will …
Time Needed: 60+ min
Materials Needed: none
Degree of Risk: Medium- to high-risk. Appropriate for groups with a high degree of trust and the ability to communicate clearly about bodies and consent.
Procedure:
Setting the stage (20-25 min)
Sculpting (40+ minutes)
Facilitation Notes & Considerations:
This activity presents many accessibility challenges, which can be valuable opportunities to practice disability justice through collective access. Sculpture volunteers will have different needs and abilities in terms of holding positions within the sculpture. But all bodies are capable of expressing meaning - if the position a sculptor had in mind is not going to work for someone’s body, the sculptor will have to find another way to express that idea. Participants may also have different needs around personal space, which may lead some to choose not to volunteer. If some participants have visual impairment such that they cannot observe the sculpture, facilitators should add a step inviting other participants in an observer role to describe the sculpture aloud.
This activity exercises a kind of thinking not often valued in academic or training spaces. Some participants may especially thrive with the opportunity to express concepts spatially and visually rather than verbally. Others may struggle. Only a few participants will play the role of sculptors, and it is okay if those are participants who happen to already feel comfortable with this kind of thinking, or if the sculptors include people who are trying this out for the first time. To make the activity less intimidating for potential sculptors, it may be helpful to introduce it in advance so that people have time to consider how they might express course concepts in this medium.
Recommended Materials/Readings for Participants: none
Recommended Supplementary Materials/Readings for the Facilitator: None required. Facilitators who are interested in performance and embodied practice as methods in SJE should explore the work of Augusto Boal.
Name(s) to credit for this activity: Hillary Montague Asp and Davey Shlasko
Name of Activity: Exploring current disability organizing
Instructional Purpose Category:
9. Exploring liberation and social action
Instructional Purpose: Participants become familiar with current disability organizing and gain inspiration for potential actions they may take
Learning Outcomes:After this activity participants will …
Time Needed: 75+ min (less if some is assigned as homework)
Materials Needed: internet access
Degree of Risk: Low- to medium-risk
Procedure:
Facilitation Notes & Considerations:
Depending on the group’s learning needs and scheduling constraints, steps 1-4 may be assigned as homework (individually or as group projects), leaving more time in session for the discussions.
It will be helpful for facilitators to have done some research in advance in order to share examples of disability organizing that is local and/or especially relevant to participants’ focus (academic fields, jobs, etc.). It is often easiest to identify organizing that is relatively “official” and institutionalized, but a lot of the most meaningful, intersectional and disabled-led work is more informal. Look for groups organizing via social media even if they are not organized as a nonprofit; look for student groups that may be organizing to get their needs met even if they’re not framing it as activism; where you find an effort that appears to be led by service providers, look for where the most-impacted people are involved in those efforts.
Recommended Materials/Readings for Participants: none
Recommended Supplementary Materials/Readings for the Facilitator: None
Name(s) to credit for this activity: Davey Shlasko
Name of Activity: Mapping Disability Justice in Your Context
Instructional Purpose Category:
9. Exploring liberation and social action
10. Developing Action Plans
Instructional Purpose: Participants identify what would need to change in their context (school, professional, or community) to move toward disability justice
Learning Outcomes: After this activity participants will …
Time Needed: 60 min
Materials Needed: easel pads, markers and/or other art supplies
Degree of Risk: Low- to medium-risk
Procedure:
Facilitation Notes & Considerations:
Envisioning disability justice can be challenging because it is so far from the norms of most institutions. It may be helpful to prompt groups to think more ambitiously - not only in terms of making sure a context works as well for disabled people as abled people, but even further to consider how disability justice can inspire a context that works even better than that for everybody. Refer back to earlier activities and resources, especially those related to disabled community wisdom and strategies for surviving ableism.
This activity presents access challenges in terms of vision and dexterity:
Recommended Materials/Readings for Participants: none
Recommended Supplementary Materials/Readings for the Facilitator: None
Name(s) to credit for this activity: Hillary Montague-Asp and Davey Shlasko
Name of Activity: Mapping Disability Justice Here
Instructional Purpose Category
9. Exploring liberation and social action
10. Developing action plans
Instructional Purpose: Participants explore their current physical and social location - often, the institution hosting the workshop - and identify opportunities for change through a disability justice lens
Learning Outcomes: After this activity participants will …
Time Needed: At least 75 minutes; some can be assigned as homework
Materials Needed: easel pads; markers; handout (optional) tailored to the particular context; other art/office supplies (optional) such as stickers, sticky notes, glitter, yarn, etc.
Degree of Risk: Typically low-risk; may feel riskier if participants are people with decision-making power in the institution the group is exploring
Procedure:
If you decide on a relatively broad scope, like a whole university or a whole town, the participants can work together as one large group, with smaller groups taking on different pieces of the task. If the scope is narrower, you might decide to have small groups work independently of each other, and compare results at the end of the activity.
If the group needs more specific guidance, you might add questions like:
This activity presents access challenges in terms of mobility, energy, vision and dexterity:
Recommended Materials/Readings for Students: The 10 principles of Disability Justice, from Sins Invalid, (2019), Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.). [Digital version]. Retrieved from sinsinvalid.org.
Recommended Supplementary Materials/Readings for the Facilitator: Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.). [Digital version]. Retrieved from sinsinvalid.org.
Name(s) to credit for this activity: Hillary Montague-Asp and Davey Shlasko
Name of Activity: Scenarios for Taking Action Against Ableism
Instructional Purpose Category:
9. Exploring liberation and social action
10. Developing action plans
Instructional Purpose: Participants generate ideas and practice strategies for interrupting ableist situations.
Learning Outcomes: After this activity participants will …
Time Needed: 60 min
Materials Needed: easel pads; markers; handout with scenarios
Degree of Risk: Medium to high
Procedure:
Sample Scenarios:
Chris is an upper-level graduate student who is teaching a summer course at a large public university. One of the students is Deaf and needs accommodations for the course, including transcription of audiovisual material and writing support from a learning specialist. Ordinarily the student would receive these services through the Dis-
ability Services office, but the office is unstaffed for the summer.
Michael is a TA for one section of a large lecture course. One of the students in Michael’s section, Marlene, is experiencing ongoing symptoms of pain and fatigue that her doctor does not know how to diagnose. She has frequent absences from class, and the course policy is that students need medical documentation for an absence to be excused. Marlene explains to Michael that when she is too sick to come to class, she is also too sick to walk to the doctor’s office to get a note. Her doctor has refused to provide documentation of her overall health situation, since there is no diagnosis. Marlene is keeping up with her work, but she is in danger of failing the class due to her number of absences.
Connie is a transgender sophomore who has a back injury that makes it very difficult for her to walk up and down stairs. As a freshman, Connie had a first-floor room for this reason. After Connie transitioned over the summer, she requested a single room in a mixed-gender hall because she did not feel comfortable rooming with a cisgender man or woman. The college obligingly assigned Connie to a single room in the only mixed-gender
hall, which is on the third floor of a building with no elevator. Connie’s neighbor down the hall, Flo, sees how much pain Connie is in after walking up the stairs, and asks what’s wrong. Connie tells Flo the whole story.
Max, Jenna, Phil, and DeeDee have all been assigned to an “allergen-reduced” housing unit together, as accommodations for their environmental illnesses. The problem is that they all have different environmental illnesses. Jenna is allergic to mold and wants to use chemical cleaners to ensure the space is free of mold; Max has chemical sensitivities and wants everyone to avoid toxic chemicals in the cleaners and personal care products they use in the space; and so on. Amy, the staff supervisor of the residence, gets a complaint for one or another of them nearly every day about how the others’ behavior is impacting their health.
Dan and his friends are walking together after philosophy class, joking around and complaining about their professor. Dan comments that a lot of what the professor says is hard for him to understand—meaning that the content is difficult. His friend JJ starts mimicking the professor, performing an exaggerated parody of the professor’s lisp. Everyone else laughs, and Dan feels uncomfortable for having started it.
Facilitation Notes & Considerations:Facilitators should have a basic understanding of legal protections relevant to their context as well as services and resources available.
As always, facilitators should consider the known and possible access needs of participants when planning the activity. Any written materials (e.g. the scenarios handout) should be provided in advance in accessible, electronic formats. Facilitators should ask for volunteers to read aloud during the session, and not call on people to read aloud.
Some participants may recognize themselves in the scenarios, having encountered such ableism in their own lives. This may bring up feelings of anger or resentment. Other participants may recognize themselves in the ableist behaviors presented in the scenarios, which may bring up feelings of guilt or shame. Facilitators should validate participants’ feelings, and make space for participants to acknowledge each other’s feelings. In particular, participants who may experience guilt or shame should be invited to listen deeply and try to empathize with other participants’ anger or resentment, understanding it not as a personal attack but rather as an understandable reaction to the universal human experience of not getting one’s needs met. While guilt and shame are also understandable reactions, they can often lead to avoidance rather than action; helping participants recognize how they can do better in the future can make it possible for them to acknowledge their own guilt and shame without getting stuck in it.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator: Same as the above plus the rest of Sins Invalid, (2019), Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.).
Name(s) to credit for this activity: Davey Shlasko
Name of Activity: 4As for Self Assessment and Action Planning
Instructional Purpose Category:
9. Exploring liberation and social action
10. Developing action plans
Instructional Purpose: Participants use Barbara Love’s “elements of a liberatory consciousness” to explore how to become more prepared to take effective, accountable action.
Learning Outcomes: After this activity participants will …
Time Needed: 30 min
Materials Needed:
Degree of Risk: Medium to high
Procedure:
Facilitation Notes & Considerations:
If this is participants’ first exposure to the “elements of liberatory consciousness,” the activity can be quite cognitively demanding - it asks participants to learn a new, abstract framework, apply it to other material they’ve just recently learned, and then apply it concretely to themselves. It may be helpful to scaffold the task by introducing the framework earlier, or by assigning it as reading and/or reflection to be done before the workshop. This makes the activity more accessible for people with a variety of processing speeds.
Some participants may assess themselves quite harshly, and get stuck in feelings of guilt or shame. It can be helpful to acknowledge these feelings and then redirect participants to the question of what they can do now to improve.
Other participants may assess themselves too generously. This is often a sign their awareness is not as deep as they might think - they feel like they’re already doing all four elements because they lack awareness of how much more is possible. During the large-group discussion, follow-up questions can help to clarify how far participants’ awareness, analysis, accountability and action really go. Even if someone thinks they are already doing all four elements, they should be able to recognize ways they can continue to improve.
Recommended Materials/Readings for Students: “Developing a liberatory consciousness,” Barbara Love, Selection 128 in Readings for Diversity and Social Justice, 4rd edition.
Recommended Supplementary Materials/Readings for the Facilitator: “Developing a liberatory consciousness,” Barbara Love, Selection 128 in Readings for Diversity and Social Justice, 4rd edition.
Name(s) to credit for this activity: Davey Shlasko
Name of Activity: Backwards Planning and Goal Setting
Instructional Purpose Category:
9. Exploring liberation and social action
10. Developing action plans
Instructional Purpose: Participants identify stakeholders, barriers, resources and steps to pursue complex actions toward disability justice.
Learning Outcomes: After this activity participants will …
Time Needed: 45 min
Materials Needed:
Degree of Risk: Medium to high
Procedure:
Facilitation Notes & Considerations: Depending on the group’s experience with advocacy and/or with any kind of project planning, participants may need a lot of support from facilitators and/or each other. If you know or guess that the group is relatively inexperienced, presenting an example of a completed plan (or even better, a plan that has already been successfully executed) will be helpful.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: Davey Shlasko
Name of Activity: Closing Circle for Ableism and Disability Justice Workshop
Instructional Purpose Category:
11. Processing / debriefing the process
Instructional Purpose: Participants reflect on their experiences and transition out of the workshop space.
Learning Outcomes: After this activity participants will …
Time Needed: 20 min
Materials Needed: none
Degree of Risk: Medium to high
Procedure:
Facilitation Notes & Considerations:
Accessibility: The activity as written above is accessible for most wheelchair users, but may present challenges for people who do not use wheelchairs and can only walk/stand for short periods of time. Remind participants that as always anyone who needs to sit should feel free to do so. If you know that one or more participants will find the physical aspect of the activity a barrier, you can conduct the verbal elements of the activity without having participants stand or step/move anywhere. However, the physical parts of the activity do serve a purpose - they engage people with kinesthetic learning styles and create a powerful emotional experience for the group. Before giving them up entirely, look for ways to integrate people into the experience, moving in whatever ways work for their bodies.
The last two prompt options above, a request and an offer, are most appropriate for groups where there is an ongoing relationship that will continue after the workshop ends (e.g. if they all work together). Depending on the context and type of group, requests and offers may be material, emotional, logistical, or something else. Some examples are listed below, but with many groups it is most helpful not to limit participants’ imaginations by giving examples.
Note that the “requests” should be taken as real (not hypothetical) requests, but not as demands or requirements. Someone may request something that the group is not able to provide. This activity does not establish a plan for meeting everyone’s needs; it does make public the needs and resources that exist in the group, so that the group can move forward together in a compassionate, coordinated and interdependent way.
Recommended Materials/Readings for Students:
Recommended Supplementary Materials/Readings for the Facilitator:
Name(s) to credit for this activity: This is a legacy activity we have learned from many generations of facilitators, most recently adapted by Benjamin Ostiguy and Davey Shlasko.
Examples of Disability Justice Organizations and Organizing
The following organizations work on disability justice and/or disability rights, and are led by disabled people. We offer this list as a starting point for exploring current disability organizing. We encourage educators and learners to explore each organization curiously and critically, asking questions like:
ADAPT - uses nonviolent direct action and other tactics to defend disability benefits and the right to live independently.
Abolition and Disability Justice Coalition - an organization offering resources and guidance to center disability justice in prison abolition work.
ASAN (Autistic Self Advocacy Network) - a non-profit run for and by Autistic people advocating for the inclusion of Autistic people in policy-making and all forms of self-advocacy.
Autistic Black Brown, Indigenous, Asian and Mixed-Race People of Color- a Facebook group that is a gathering place for Autisitc BIPOC
Autistic Hoya - website of Lydia X Z Brown, autistic Asian disability justice and autistic organizer.
Autistic Women and Nonbinary Network - a non-profit organization providing community, support and resources for Autistic people of marginalized genders.
Creating Collective Access - a crip-led collective from 2010-2012 creating access in ways that build community, care, crip solidarity and solidarity with non-disabled comrades.
#CripTheVote - a nonpartisan online movement activating and engaging disabled people on policies and practices important to disability communities.
Detroit Disability Power - a membership organization working to organize and build the political power of disabled people.
Disability and Intersectionality Summit - a biennial national conference organized by and for disabled people to share experiences and stories of disability, systems of oppression, hope, healing and liberation.
Disability Justice Dreaming - “a Portland OR-based, inter/national Disability Justice gathering space that focuses on disabled art, justice, culture, leadership, and more, by and for Queer and Trans (QT) + Black, Indigenous, Multiracial, and People of Color (BIPOC).”
Disability Justice Network of Ontario - an organization working to build a just and accessible Ontario where disabled people have power, agency and community.
#DisabilitySoWhite - a hashtag started in 2016 by Vilissa Thompson, which sparked discussion about racism in mainstream disability organizing and the underrepresented voices of disabled people of color.
Disability Visibility Project - an online community dedicated to creating, sharing and amplifying disability media and culture.
Epiphanies of Equity - an organization providing social equity consulting and advocacy focused on disability justice, antiracism and systems-level reconstruction for equity and justice.
Fireweed Collective - an organization offering mental health education and mutual aid by centering the most marginalized in their work for emotional wellness for all people.
HEARD - HEARD is a cross-disability abolitionist organization that unites across identities, communities, movements, and borders to end ableism, racism, capitalism, and all other forms of oppression and violence.
Krip Hop Nation - a global association ofhiphop artists with disabilities that hosts concerts, tours and workshops to advocate for equality for disabled people.
L.A. Spoonie Collective - a collective of disabled, neurodivergent and chronically ill LGBTQIA+ people in Los Angeles offering workshops and panel discussions.
NoBody Is Disposable Coalition: a coalition of disability justice, elder, fat and other groups fighting everything from care rationing and ICUgenics and vaccine discimination under COVID, to resist disposability and insist on care, to fight nursing home immunity from accountability, to demand PPE for frontline workers, to end police violence, and more.
Not Dead Yet - a national grassroots disability rights group that opposes legalization of assisted suicide and euthanasia as deadly forms of discrimination.
People’s Hub - an organization offering live, interactive online training to reduce cost and make skills and support more available and accessible to community groups across the world, including a lot of disability work
Project Lets - an organization dedicated to building peer support collectives, developing new knowledge and language around mental distress and creating peer-led alternatives to our current mental health systems.
Rebirth garments - online gender non-conforming clothing and accessory shop centering non-binary, trans, disabled and mad queers of all sizes and ages
Sins Invalid - a disability justice based performance project, led by disabled people of color, that grows and celebrates disabled artists with a focus on disabled artists of color and disabled LGBTQ+ artists.
Stopgap Dance Company - a dance company committed to removing barriers to dance and nurturing dancers born into any body and any mind.
References
Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.). [Digital version]. Retrieved from sinsinvalid.org.
Accommodation: Any modification or adjustment to the environment, format, or equipment that allows for disabled individuals to participate or complete tasks.
Abled (also, temporarily able bodied): The temporary state in which someone’s body is close enough to societal expectations to be considered non-disabled. Some prefer the term “abled” over “able bodied” because it indicates that it is societal expectations, and not one’s body per se, that defines who is or isn’t disabled. Others oppose both terms because they imply a binary in which disabled people lack all ability.
Ableism: The pervasive system which oppresses disabled people while privileging people who are abled through institutional policy and practice, cultural norms and representations, and individual beliefs and behaviors.
Americans with Disabilities Act: Legislation passed in 1990 which establishes a uniform basis for the government definition of disability and prohibits discrimination on the basis of disability, not only against people who have a disability but also against people who have a history of disability even if they are no longer disabled, and people who may be regarded by others as having a disability.
Chronic illness: Any health condition lasting six months or longer that limits one or more life activities.
Collective access: The idea that access should be a collective rather than individual responsibility. Collective access projects usually include disabled people organizing access for themselves, on the principle that they know best what they need.
Crip: Short for cripple, an example of reclaimed, identity-first language by which some disability communities turn pejorative words into markers of pride. In critical disability studies and some disability activism, crip is also used as a verb, meaning to apply a disability justice lense (e.g. crip theory, crip the vote), and as an adjective marking something bearing the unique perspective and understanding of disability (e.g. crip time is the disabled experience of time as understood through a disability justice lens).
Deaf/deaf: The partial or total impairment of hearing. Those who are culturally Deaf (with a capital D) define themselves not only through the physical condition of not hearing, but also through a shared culture and language (in the US, American Sign Language or ASL).
Disability: Defined by the ADA as “a physical or mental impairment that substantially limits one or more major life activity” (Americans with Disabilities Act, 1990), and more broadly understood through the social model of disability as the state of having physical and mental limitations that do not meet the expectations of the built or social environment. A person’s experience with disability and self-identification with the term may shift across the lifetime.
Deinstitutionalization: Efforts which began in the early 20th century to reform, and ultimately end the practice of confining people with intellectual and severe mobility impairments to institutions such as asylums and state hospitalis. These efforts were led by people with disabilities, their families, and journalists.
Disability Justice Model: An intersectional social justice approach to disability which assumes that allpeople have both limitations and strengths, and that the distinction between disabled and non-disabled is socially constructed, political, and tied up in other systems of oppression (Sins Invalid, 2019).
Disabled (see also people with disabilities): A socially constructed and inherently political category which includes people whose physical or mental limitations conflict with societal expectations. An example of identity-first language.
Eugenics: A pseudo-scientific philosophy and practice that was mainstream medical science throughout the early 20th century, which promoted selective breeding, sterilization and euthenasia as tools to achieve an “ideal” human form and a more orderly society.
IDEA (Individuals with Disabilities Education Act): Legislation passed in 1975 which makes available free public education and appropriate accomodation to eligible children with disabilities.
Identity-first language: A way of talking about disability that puts the condition or identity first, e.g. “disabled person” rather than “person with a disability” and “autistic person” rather than “person with autism.” Preferred in some disability communities because it emphasizes that disability is neither trivial nor shameful, and acknowledges membership in a disability community as important to one’s sense of self.
Impairment: An individual difference that limits functioning relative to the norm, e.g. mobility impairments, sensory impairments, etc.
Independent Living Movement: A cross-disability movement prominent in the 1960s and 1970s that emphasized the individual rights of disabled people and organized around the common social identity as people with disabilities. The movement identified the “problem” of disability as primarily social rather than individual or biological and advocated for changes to allow disabled people to live independently in mainstream communities.
Inspiration porn: Media that portrays disabled people as inspirational just for doing ordinary things that most people do (like eating, tying their shoes, or going on a date). Not necessarily sexual.
Institutionalization: The practice from the 18th century through the 1960s of confining people with intellectual and severe mobility impairments to institutions such as asylums and state hospitals. While these institutions purported to provide medical care, they also explicitly aimed at removing disabled people from the community because they were seen as dangerous to the social order.
Interdependence: A framework for social change that recognizes that marginalized communities cannot count on mainstream institutions to meet their needs and instead focuses on the ways in which disabled people can collaborate in community to meet each other’s needs.
Little person: An individual affected by dwarfism, a medical or genetic condition that usually results in an adult height of 4’10” or shorter.
Person-first language: A way of talking about disability that puts “person” before the condition or identity, e.g. “person with a disability” rather than “disabled person.” Introduced by independent living advocates in the 1960s as an intervention against a dominant assumption that people’s disabilities define them entirely and overshadow everything else about their personhood.
Medical Model: The framework that defines disability as an individual flaw or abnormality that is inherently negative, and seeks to prevent or cure disability when possible. This model works to assimilate disabled people into non-disabled mainstream institutions (schools, workplaces, etc.) through medical treatments that make them as similar to nondisabled people as possible. The medical model has also been used to promote institutionalization.
Neurodivergence: A broad category referring to the state of having a brain, nervous system, or both that operates differently from the typical. This framework can include everything from traumatic brain injury to autism, depression, schizophrenia and more without placing value judgments regarding which forms of neurodivergence are more or less legitimate, severe, acceptable, etc.
Neurodiversity: The idea that all brains and nervous systems are different from each other, and that those differences can be described and celebrated without categorizing some as normal and others as pathological.
People with disabilities (see also disabled people): A socially constructed and inherently political category which includes people whose physical or mental limitations conflict with societal expectations. An example of person-first language.
Sizeism: The pervasive system which oppresses some people and privileges others on the basis of size or weight. Sizeism privileges leaner bodies over fat* bodies through institutional policy and practice, cultural norms and representations, and individual beliefs and behaviors. (*We use the word fat in the spirit of body-positive and fat-liberation activists, who reclaim the word as a neutral description of size rather than a pejorative word. These activists point out that euphemisms and diagnostic categories (including “overweight” and “obesity”) are just as pejorative and carry more weight (pun intended) in enforcing stigma and justifying discrimination and mistreatment.)
Social Model: The framework that defines impairment as not necessarily negative, but as a neutral difference, which only becomes disability to the extent that the built and social environment does not accommodate it. The social model does not seek to cure or prevent disability but rather to make social changes to increase access to participation in spite of impairments.
Stimming: Self-soothing behaviors, usually involving repetitive, rhythmic movement or sounds, most commonly associated with autism, ADHD, or severe anxiety and stress. While everybody stims, some forms of stimming are stigmatized and pathologized.
Reasonable accommodation: A legal designation referring to “any modification or adjustment to a job or the work environment that will enable an applicant or employee with a disability to participate in the application process or to perform essential job functions” (Americans with Disabilities Act, 1990).
Rehabilitation approach: An approach to addressing disability that assigns expertise to professionals such as case workers, occupational therapists, or special ed teachers with the ultimate goal of bringing disabled people into the workforce.
Ugly laws: Municipal statutes in the U.S. that outlawed the appearance in public of people who were, in the words of one of these laws, “diseased, maimed, mutilated, or in any way deformed, so as to be unsightly or disgusting object” (Chicago City Code 1881). These statutes were enacted and actively enforced between the American Civil War (1867) and World War I (1918), and some remained on the books through the 1970s.
Universal Design for Learning (UDL): An approach to curriculum design and teaching which aims to make a course as accessible as possible for the widest range of people possible, thus reducing the need for individual accommodation (also called Universal Instructional Design, UID).
References
Americans With Disabilities Act of 1990, 42 U.S.C. § 12101 et seq. (1990). https://www.ada.gov/pubs/adastatute08.htm
Schweik, S. M. (2009). The ugly laws: Disability in public (Vol. 3). NYU Press.
Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.). [Digital version]. Retrieved from sinsinvalid.org.
Books:
Annamma, S. A. (2016). DisCrit: Disability studies and critical race theory in education. Teachers College Press.
Ben-Moshe, L., Chapman, C., & Carey, A. C. (Eds.). (2014). Disability incarcerated: Imprisonment and disability in the United States and Canada (p. 83). New York: Palgrave Macmillan.
Clare, E. (2017). Brilliant imperfection. Duke University Press.
Invalid, S. (2017). Skin, tooth, and bone–the basis of movement is our people: a disability justice “primer.Katherine Weatherford Darling. (2018) Solidarity in biomedicine and beyond. New Genetics and Society 37:4, pages 439-444.
Kafer, A. (2013). Feminist, queer, crip. Indiana University Press.
Lorde, A. (2020). The cancer journals. Penguin.
Moore, L. F, Jr. (2019). Krip Hop Nation. Vol 1. [Cartoon].
Morales, A. L. (2013). Kindling: Writings on the body. Palabrera Press.
Piepzna-Samarasinha, L. L. (2018). Care work: Dreaming disability justice (p. 182). Vancouver: arsenal pulp press.
Price, M. (2011). Mad at school: Rhetorics of mental disability and academic life. University of Michigan Press.
Strings, S. (2019). Fearing the black body. New York University Press.
Wood, C. (Ed.). (2014). Criptiques. May Day Publishing.
Movies / Lectures / Video Content
Ableism Is the Bane of My Motherf*cking Existence (2017)
“Exploring disability justice framework, Patty Berne and Stacey Milbern discuss the need for a politicized understanding of ableism within a context of racism, classism, colonialism, and heteropatriarchy.” https://vimeo.com/216562627?embedded=true&source=video_title&owner=1739030
Bodies as Resistance by Sonya Renee Taylor (2017)
Sonya Renee Taylor explores the potential of radical self love as a tool of everyday resistance towards a more just and equitable world. https://www.youtube.com/watch?v=MWI9AZkuPVg
Crip Camp (2020)
“Down the road from Woodstock, a revolution blossomed at a ramshackle summer camp for teenagers with disabilities, transforming their lives and igniting a landmark movement.” https://cripcamp.com
My Body Doesn't Oppress Me, Society Does (2017)
“Patty Berne and Stacey Milbern present a social model of disability, explaining how universal design, adaptive devices, and meeting people’s access needs can limit the social, economic, and physical barriers that render physical impairments disabling in an ableist society.” https://www.youtube.com/watch?v=7r0MiGWQY2g
Sins Invalid: An Unshamed Claim to Beauty (2013)
“Sins Invalid is an entryway into the absurdly taboo topic of sexuality and disability, manifesting a new paradigm of disability justice.” https://www.sinsinvalid.org/documentary
Inspiration Porn and the Objectification of Disability: Stella Young (2014)
Stella Young challenges audiences to reexamine their own relationship to disability, the builtenvironment, and urge to find inspiration behind disabled people’s lives. https://www.youtube.com/watch?v=SxrS7-I_sMQ
"Stolen Bodies, Criminalized Minds & Diagnosed Dissent: The Racist, Classist, Ableist Trappings of the Prison Industrial Complex" - (2019)
With Talila "TL" Lewis, as part of Part of the Longmore Lecture in Disability Studies series. The talk uses historical and contemporary examples to trace the connections between racism and ableism in criminal law. The in-person event in which the talk was recorded also provides a beautiful example of universal access practices.https://www.youtube.com/watch?v=zpY4v10jqXY
The Nutritionist by Andrea Gibson (2017)
Andrea Gibson describes the process of navigating depression and suicidality, the strength required to live, and the insights provided by specialists on how to cure them. https://www.youtube.com/watch?v=x3rxp2AWLTM
We Can’t Breathe: The Deaf & Disabled Margin of Police Brutality Project (2016)
“The We Can’t Breathe Video discusses the narratives of 5 people with disabilities on the margins that have been victimized by police brutality and other forms of systemic violence. The content in the video is heavy, visceral, and often difficult to watch.” https://ncil.org/resources/we-cant-breathe-the-deaf-disabled-margin-of-police-brutality-project/
Who Am I to Stop It - (2016)
“A documentary about isolation, art, and transformation after brain injury.” http://whoamitostopit.com/
Podcasts:
“Ableism & Racism: Roots of The Same Tree.” (2021). With Rebecca Cokley on Be Antiracist with Ibram X. Kendi.
“Dr. Kendi [sits]down with the California native for a frank conversation on the intersections of ableismand racism in America, the historic civil rights legislation governing both, and what we can all do to advocate for a better future for people with disabilities.” https://podcasts.apple.com/us/podcast/ableism-racism-roots-of-the-same-tree/id1564144316?i=1000524608715
Maintenance Phase. (biweekly episodes 2020 - present). With Aubrey Gordon and Michael Hobbes.
https://www.maintenancephase.com/Maintenance Phase explores issues related to fatphobia, diet culture, and “wellness culture” with an engaging, conversational tone and a critical intersectional analysis
Websites:
Abolition and Disability Justice Coalition
The Abolition and Disability Justice Coalition offers resources and guidance to center disability justice in prison abolition work.https://abolitionanddisabilityjustice.com/
Access Suggestions for Mobilizations | Sins Invalid (2017)
Sins Invalid provides suggestions for ensuring that social justice movements include disabled people Such as fragrance free policies, organizing low-stimulation spaces, and providing auditory descriptions of march routes.http://sinsinvalid.org/blog/access-suggestions-for-mobilizations
Nothing About Us without Us: Guide to Safety for Self Advocates | Autistic Self Advocacy Network
“The first toolkit made by autistic self-advocates, focusing on safety issues that affect us and the tools to deal with them. The toolkit provides information about abuse and neglect, bullying, interactions with the police, mental health, and safely navigating the community.” https://autisticadvocacy.org/policy/toolkits/safety/
Disability and Intersectionality Summit:
A biennial national conference organized by and for disabled people to share experiences and stories of disability, systems of oppression, hope and liberation. https://www.disabilityintersectionalitysummit.com/
Disability Justice| Showing Up for Racial Justice
SURJ Disability’s website provides resources meant to “ deepen our understanding of our participation in movements for justice and center race in our struggle against ableism and to hold space for the ways in which movements are often not accessible to [disabled people].” https://surj.org/our-work/surj-disability/
Disability Visibility Project
“The Disability Visibility Project is an online community dedicated to creating, sharing, and amplifying disability media and culture.” https://disabilityvisibilityproject.com/
Disabled Parts
“Disabled Parts is a growing archive of poetry, stories, photos and art about sexuality and intimacy, featuring disabled voices. We move past the question of “what is disabled sex?” and seek to build understanding and deepen connection with our bodies, ourselves, and each other.” https://disabledparts.com
Dorian Taylor's Black Disabled History Month Posts | Part 1 (2018)
“Dorian’s been chronicling #disabledblackhistorymonth, sharing interesting and inspiring stories of badass individuals you should know about, so we’ll be doing a weekly round-up of their shout-outs all month.” https://tomboyx.com/blogs/news/week-1-disabledblackhistorymonth
Kirwan Institute: Ohio Discipline Data an Analysis of Ability and Race (2015)
This report offers insights for educators and administrators on the intersection of ableism and racism in K-12 school discipline practices. http://kirwaninstitute.osu.edu/implicit-bias-training/resources/Ohio-Discipline-Data-An-Analysis-of-Ability-and-Race.pdf
Seattle Library Resource List
This list of books, articles and films by disabled people may be used to deepen your understanding of individual experiences and perspectives of disability and disability justice from disabled people themselves.
The Body is Not an Apology
“Through information dissemination, personal and social transformation projects, and community building, The Body Is Not An Apology fosters global, radical, unapologetic self-love, which translates to radical human love and action in service toward a more just, equitable, and compassionate world.” https://thebodyisnotanapology.com/